|
|
You are viewing the most recent 20 entries July 9th, 200903:17 pm: Preventing Miscarriages
On June 25th, Judy Smith did an interview with Fox News in Tampa Bay. Judy has had several miscarriages and at one point thought she had MS. It wasn't until her Dr. did a simple blood test that revealed she had a potentially life threatening illness called APS. She can not stress the importance of the APS Foundation of America, Inc (http://www.apsfa.org), and how it has played a part in helping her cope with this disease. Not only do they have a support group for others with APS, but they are the only "United States nonprofit health agency dedicated specifically to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, and young strokes and heart attacks.""Knowing more about APS can make all the difference. Get in the Know and Get in the Flow!"Please watch this video as it may help someone you know. http://www.myfoxtampabay.com/dpp/health/doctor_jo/Preventing_miscarriages_070809Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APSCurrent Mood: accomplished , anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
June 22nd, 200901:54 pm: Signs and Symptoms of Antiphospholipid Antibody Syndrome: Get in the Know and Get in the Flow!
FOR IMMEDIATE RELEASE
Date: 06/22/2009
Contact: Christina "Tina" Pohlman
Phone: 608-782-2626
Website Address: www.apsfa.org
Email Address: apsfa@apsfa.org
Signs and Symptoms of Antiphospholipid Antibody Syndrome: Get in the Know and Get in the Flow!
The Antiphospholipid (APS) Antibody Syndrome Foundation of America, Inc. (APSFA) urges the public, as well as the medical community, to learn more about this rare disease. APS Awareness Month runs throughout June.
APS is an autoimmune disorder. Such illnesses occur when the body’s tissues are attacked by its own substances. In APS, the body recognizes certain components of blood or cell membranes as foreign substances and produces antibodies--a specialized protein the body uses to prevent infection--against them. It is the major cause of strokes in persons under 40 years old, blood clots (thrombosis) – which can lead to heart attack or stroke – vision disturbances and repeated, otherwise unexplainable miscarriages.
While more general practitioners have become familiar with APS in the last few years, many physicians – and most of the public – are still unfamiliar with both its symptoms and the damage it can cause.People who arrive at emergency rooms and doctor’s offices with the following issues should be tested for APS:
• Heart attacks and strokes in those under 50
• Transient ischemic attacks, known as “mini-strokes.” TIAs last 10 minutes or less and leave no permanent damage.
• Multiple miscarriages and stroke
• Blood clots in the lung (called pulmonary emboli) or deep veins in arms and legs (called deep vein thrombosis, or DVT)
• Diminishing mental alertness, such as loss of concentration, memory loss and difficulty with reading comprehension
• Migraine headaches
• Partial or total vision loss
• Dizziness
• Seizures
APS shares symptoms with more well-known disorders such as multiple sclerosis and lupus. Diagnosis and treatment delays can cause serious, sometimes fatal complications. A simple blood test can determine whether someone has APS.
The APS Foundation of America, Inc. is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization dedicated to spreading awareness and support to those with the disease.
Knowing more about APS can make all the difference. Get in the know and Get in the Flow!
For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626 Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org
###
Public Service Annoucement for Week 4:
http://www.youtube.com/watch?v=GRiK_CncGyU
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSATags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, psa, stroke, thrombosis, usa
June 15th, 200903:17 pm: APS Often the Culprit Behind Heart Attack and Stroke in Younger Adults
FOR IMMEDIATE RELEASE
APS Often the Culprit Behind Heart Attack and Stroke in Younger Adults
The Antiphospholipid Antibody Syndrome Foundation of America, Inc. (APSFA) urges the public, as well as the medical community, to learn more about this rare disease. APS Awareness Month runs throughout June. APS is an autoimmune disorder. Such illnesses occur when the body’s tissues are attacked by its own substances.
In APS, the body recognizes certain components of blood or cell membranes as foreign substances and produces antibodies--a specialized protein the body uses to prevent infection--against them. It is the major cause of strokes in persons under 40 years old, blood clots (thrombosis) – which can lead to heart attack or stroke – vision disturbances and repeated, otherwise unexplainable miscarriages.
A heart attack generally occurs when a coronary artery clot blocks the supply of blood and oxygen to heart muscle. There are more than one million heart attack sufferers annually in the U.S.; about half of those stricken die. Unfortunately, many heart attack victims wait two hours or more after symptoms begin before they seek medical help. This delay can result in death or lasting heart damage.
A stroke, or "brain attack," occurs when blood circulation to the brain fails. Brain cells can die from decreased blood flow and the resulting lack of oxygen. There are two broad categories of stroke: those caused by a blockage of blood flow (called “ischemic” strokes) and those caused by bleeding. Ischemic strokes account for about 80 percent of all strokes. They usually are not fatal.
A transient ischemic attack, or TIA, is an ischemic stroke that occurs when the brain’s blood supply is interrupted briefly (10 minutes or less). There generally is no lasting damage, but recent research shows that about half of people who experience a TIA have a full-blown stroke within 24 hours.
APS is the leading cause of heart and brain attacks in people under 50. If you have a personal or family history of heart attack or stroke before age 50, ask your primary care physician to test you for APS. It requires only a simple blood test.
The APS Foundation of America is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization dedicated to spreading awareness and support to those with the disease.
Knowing more about APS can make all the difference. Get in the know and Get in the Flow!
###
Public Service Announcement for Week 3:
http://www.youtube.com/watch?v=63-5f0G9CCA
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS Current Mood: accomplished , anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
June 9th, 200912:54 pm: Press Release: APS Linked to Birth Difficulties (2009)
FOR IMMEDIATE RELEASE Date: 06/8/2009
Contact: Christina "Tina" Pohlman
Phone: 608-782-2626
Website Address: www.apsfa.org
Email Address: apsfa@apsfa.org
APS Linked to Birth Difficulties
The Antiphospholipid Antibody Syndrome Foundation of America, Inc. (APSFA) urges the public, as well as the medical community, to learn more about this rare disease. APS Awareness Month runs throughout June.
APS is an autoimmune disorder. Such illnesses occur when the body’s tissues are attacked by its own substances. In APS, the body recognizes certain components of blood or cell membranes as foreign substances and produces antibodies--a specialized protein the body uses to prevent infection--against them. It is the major cause of strokes in persons under 40 years old, blood clots (thrombosis) – which can lead to heart attack or stroke – vision disturbances and repeated, otherwise unexplainable miscarriages.
Even otherwise-healthy women are at higher risk of developing blood clots and preeclampsia, a blood pressure disorder that occurs only during pregnancy. In women with APS, blood clots can form in the placenta and starve the baby of nutrition. Placental clots can cause fetal growth problems and distress, premature birth, or miscarriage. Some women with APS have difficulty becoming pregnant at all.Babies born to women with APS often are delivered between 30 to 35 weeks gestation, or about 5 to 10 weeks early. Low birth weight – between 3 to 5 pounds – is not uncommon, although the babies generally are healthy and thrive after delivery.
Physicians often suggest that women of childbearing age who also are susceptible to blood clots remain indefinitely on a course of low-dose aspirin therapy. Aspirin is a readily available, inexpensive drug to help guard against blood clots. As with gestational diabetes, in which the illness resolves itself once the baby is delivered, it is possible for some women with clotting issues during pregnancy to return to full health post-birth.
APS can be diagnosed with a simple blood test. It frequently is found in conjunction with lupus, another autoimmune disorder that primarily targets women.
Knowing more about APS can make all the difference. Get in the know and Get in the Flow!
The APSFA is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization.
For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626 Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org
###
Public Service Announcement for Week 2:
http://www.youtube.com/watch?v=z2snb2bXUEI
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APSTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
June 1st, 200901:20 pm: JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!
Date: 06/01/2009
Contact: Christina "Tina" Pohlman
Phone: 608-782-2626
Website Address: www.apsfa.org
Email Address: apsfa@apsfa.org
JUNE IS APS AWARENESS MONTH: GET IN THE FLOW! The Antiphospholipid Antibody Syndrome (APS) Foundation of America, Inc. (APSFA) urges the public, as well as the medical community, to learn more about this rare disease. APS Awareness Month runs throughout June.
APS is an autoimmune disorder. Such illnesses occur when the body’s tissues are attacked by its own substances. In APS, the body recognizes certain components of blood or cell membranes as foreign substances and produces antibodies--a specialized protein the body uses to prevent infection--against them. It is the major cause of strokes in persons under 40 years old, blood clots (thrombosis) – which can lead to heart attack or stroke – vision disturbances and repeated, otherwise unexplainable miscarriages.
APS often is found in conjunction with lupus, another autoimmune disorder that primarily targets women.Knowing more about APS can make all the difference.
Get in the know and Get in the Flow!
The APSFA is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization.
For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org ###
Public Service Announcement for Week 1
http://www.youtube.com/watch?v=eF4IMW-3Ugk
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSA , anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, psa, stroke, thrombosis, usa
May 23rd, 200909:04 pm: Antiphospholipid Syndrome (APS) Education
Michael D. Lockshin, MD
Attending Rheumatologist, Hospital for Special SurgeryProfessor of Medicine, Weill Cornell Medical CollegeDirector, Barbara Volcker Center for Women and Rheumatic Disease
In this presentation, Dr. Lockshin provides an explanation of antiphospholipid syndrome (APS) and how it can be treated. He then answers questions submitted by patients in attendance.
http://www.hss.edu/conditions_antiphospholipid-syndrome-education.aspKeywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APSTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
May 21st, 200909:25 pm: Volume 13 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
Hello!!
The SPRING/SUMMER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol13SprSum2009.pdf
The next volume will be coming out in late Summer, early Fall, 2009.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.
We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.
If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.
Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.
We could also use articles written by medical professionals or medical students. Please contact us if you are interested.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APSTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
April 15th, 200907:33 pm: Antiphospholipid Antibody Syndrome (APS) Workshop
 Who: Hospital for Special Surgery
What: Antiphospholipid Antibody Syndrome (APS) Workshop
Where: 535 East 70th Street, New York City
When: Thursday April 30, 2009 from 6:00PM - 8PM EST
Why: APS can affect any organ, potentially causing blood clots, strokes, miscarriages, or other symptoms. It can occur alone or may be associated with an immune disorder like lupus.
For More Information: Call 212-774-7326
To Register: Click here: http://wwww.hss.edu/pped
This one-session workshop provides an essential overview of diagnosis and treatment, and the opportunity to share your experiences with others coping with APS.
Speakers will be Michael Lockshin, MD and Jillian Rose, LMSW
The APS Foundation of America, Inc will have materials present.
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APSTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
April 9th, 200905:53 pm: New Cafe Press Graphics & Gear - Check It Out!
New Cafe Press Graphics & Gear - Check It Out!
We just added several new designs in our CafePress store. If there's a design you like and it's not on an item (like a button, hat, sticker...etc) please email Heidii at heidi@apsfa.org and she will add it. Our Cafe Press Store is located here: http://www.cafepress.com/apsfoundation
100% of the profits from these products will go to the APS Foundation of America, Inc. APS Stands for Antiphospholipid Antibody Syndrome, which is a blood disorder that causes blood clots, strokes in young people and multiple miscarriages in women. The APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, public awareness, research and patient services in an effective and ethical manner. Thanks for looking!Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
March 19th, 200907:01 pm: March is Deep Vein Thrombosis (DVT) Awareness Month
March is Deep Vein Thrombosis (DVT) Awareness Month
Click on this banner to watch the video:
or you can watch this here: http://www.youtube.com/watch?v=RUYI6Xju4RA
For DVT related awareness gear go to http://www.cafepress.com/apsfoundation.Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APSTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
March 2nd, 200908:38 am: Volume 12 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
Volume 12 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available! Hello!!The WINTER/SPRING 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol12WinSpr2009.pdfThe next volume will be coming out in late Spring, early Summer, 2009.Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.We could also use articles written by medical professionals or medical students. Please contact us if you are interested.Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htmThank you for your continued support!Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletterTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa
December 3rd, 200810:05 am: Volume 11 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
The FALL/WINTER 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol11FallWin2008.pdf
The next volume will be coming out in late winter/early spring, 2009.Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.
We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.
If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.
A patient story is as easy as writing your intro!
Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.
We could also use articles written by medical professionals or medical students. Please contact us if you are interested.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keyword: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletterTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa
November 23rd, 200801:03 pm: 2008 APSFA Giving Tree
 Welcome to our 3rd annual Holiday Giving Tree. This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. In the past two years over $3000 were donated to the APS Foundation of America, Inc. during the holiday season. Each ornament and present signifies a donation made to the APSFA in the name of an individual or group honored at this special time of the year. This donation will enable us to keep our unique non-profit organization operating and help promote awareness of APS. All donations made by 12/31/08 towards the Giving Tree are tax deductible. To make a donation and add an ornament to our tree click here: http://www.apsfa.org/givingtree.htm Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, fundraiser Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, fundraiser, heart attack, holiday, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
01:02 pm: *Exclusive* 2008 APSFA Holiday Ornament
 This is an EXCLUSIVE holiday ornament for 2008. This design will not be available after December 31, 2008 so get it while you can! Each ornament bought will donate $2.00 to the APSFA. $7.99 http://www.cafepress.com/apsfoundation/1952386 Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, fundraiser Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, fundraiser, heart attack, holiday, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
October 19th, 200806:05 pm: Join Us Today!
This text is replaced by the Flash movie. 
October 12th, 200803:00 pm: Antiphospholipid Antibody Syndrome (APS) Focus Interview
You read about it in the newsletter and we did get in on the net in full!! Enjoy!Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
September 29th, 200807:17 pm: Volume 10 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
Volume 10 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
Hello!!
The SUMMER/FALL 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol10SumFall2008.pdf
The next volume will be coming out in November/December, 2008.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our support forum. (http://www.apsforum.com) So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.
We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org. If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.
Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletterTags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa
June 4th, 200809:09 am: Volume 9 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
 Hello!!
The SPRING/SUMMER 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol9SprSum2008.pdf
The next volume will be coming out in August/September, 2008.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our support forum. (http://www.apsforum.com)
So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors. We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.
If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters. Thank you to those people who have submitted articles.
If you have submitted an article and we have not used it yet, we will be using it in the near future.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletterCurrent Mood: accomplished , anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa
June 1st, 200810:42 am: JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!
 FOR IMMEDIATE RELEASE Date: 06/02/2008 Contact: Christina "Tina" Pohlman Phone: 608-782-2626 Website Address: www.apsfa.org Email Address: apsfa@apsfa.org JUNE IS APS AWARENESS MONTH: GET IN THE FLOW! The APS Foundation of America, Inc. (APSFA) has declared June as National Antiphospholipid Antibody (APS) Awareness Month. We are educating the public and medical community about this disorder, urging people to Get in the Flow! This disorder threatens to become more common than Lupus and Multiple Sclerosis. The APSFA is sending petitions to several states to make June APS Awareness Month. The APSFA will be attending conferences, medical seminars, grand rounds and health fairs to share the patient perspective and provide awareness of APS throughout the month of June and also encouraging the community to Get in the Flow. Individual and APSFA fundraisers will be occurring throughout the country to help promote APS awareness and help support the mission. Knowing more about APS can make all the difference. Get in the know and Get in the Flow! The APSFA is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization. For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626 Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org ### Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa
May 2nd, 200809:14 am: June is APS Awareness Month PSA
URL: http://www.youtube.com/watch?v=7ZLUij1O-MQ June is Antiphospholipid Antibody Syndrome (APS) Awareness month.
APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness. The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. Our URL is http://www.apsfa.org Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSATags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, psa, stroke, thrombosis, usa
Powered by LiveJournal.com
|
![[info]](http://l-stat.livejournal.com/img/userinfo.gif){kind=small}