11:58 am: Faces of APS - The APSFA Needs YOUR Help!
The APSFA is looking for people to submit their photos for "The Faces of APS". Details in the .pdf linked below. Please help us bring awareness to this disease to main stream media!

Deadline: January 4, 2010

http://www.apsfa.org/docs/Faces%20of%20APS.pdf

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, faces

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, faces, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

11:31 am: FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is Available
The FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol15FallWinter2009.pdf

The next volume will be coming out in late Winter, early Spring, 2010.

Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa

08:04 pm: *Exclusive* 2009 APSFA Holiday Ornament

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, ornament

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, holiday, hughes syndrome, lupus, migraine, miscarriage, ornament, pe, stroke, thrombosis, usa

10:46 am: 2009 APSFA Giving Tree


Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, giving tree, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

03:25 pm: `Wipeout' TV show player with rare condition dies
`Wipeout' TV show player with rare condition dies
Thu Nov 12, 7:03 pm ETLOS ANGELES – A contestant who was hospitalized after competing briefly on the game show "Wipeout" died two weeks later of a stroke apparently caused by a rare condition, his father said.

Tom Sparks, 33, was participating in the first segment of an obstacle course Oct. 19 when he complained of knee pain, according to Endemol, the company which produces "Wipeout" for ABC.

Producers had him stop, Endemol said Thursday. On-set medics examined Sparks, noticed he was short of breath and took him to a local hospital.

He was moved to Cedars-Sinai Medical Center and underwent several brain surgeries, according to TheWrap.com, which first reported Sparks' Nov. 5 death.

Sparks couldn't be saved because of the brain damage that had occurred, the Web site said, citing an e-mail to alumni from a faculty member at Sparks' alma mater.

Sparks, a former Sun Valley, Idaho, radio disc jockey, earned a bachelor's degree from the University of Southern California and later earned a master's degree from the USC Annenberg School for Communication & Journalism. In a statement to the Idaho Mountain Express and Guide, Bill Sparks, his father, said doctors determined the stroke probably was caused by antiphospholipid antibody syndrome, known as APS.

APS is associated with recurrent clotting events including premature stroke and heart attack, according to the APS Foundation of America Inc.'s Web site. "Wipeout" contestants undergo medical examinations before they are cleared for the show, Endemol said. However, the diagnosis of APS requires specialized blood tests, the foundation said on its site.

"We offer our heartfelt condolences to the family," ABC and Endemol said in a joint statement. "This is a tragic loss and our thoughts are with them at this time."

Sparks, who was a runner and recently competed in a marathon, had just married and was competing on "Wipeout" with his wife, Kate, on a couples episode. The show is in production for the third season, premiering next summer.

___
On the Net:
http://www.apsfa.org/
http://www.abc.go.com

Story URL: http://news.yahoo.com/s/ap/20091113/ap_en_tv/us_tv_wipeout_player_dies

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, wipeout, tom sparks

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, tom sparks, usa, wipeout

05:03 pm: 2009 H1N1 Flu (referred to as “swine flu” early on) and Seasonal Flu Information for People with Inf

2009 H1N1 Flu (referred to as “swine flu” early on) and Seasonal Flu Information for People with Inflammatory Arthritis or Rheumatic Disease

October 15, 2009, 11:00 AM ET

How does arthritis affect how I respond to the flu?

People with certain types of arthritis, called inflammatory or systemic arthritis or autoimmune rheumatic disease, have a higher risk of getting flu-related complications, such as pneumonia. Inflammatory arthritis affects the immune system which controls how well your body fights off infections. Also, many medications given to treat inflammatory arthritis can weaken the immune system. People with weakened immune systems are at high risk for getting more severe illness and complications such as hospitalization with the flu. Rheumatoid arthritis and lupus are the most common types of inflammatory arthritis.

People with osteoarthritis, also called degenerative arthritis, are likely not at increased risk of complications from the flu unless they also have other high-risk conditions for flu such as asthma, diabetes, heart disease, or cancer. If you have one of these types of inflammatory arthritis, you may be at high risk for complications from the flu. You should discuss your risk for complications from the flu with your healthcare provider.

Types of Inflammatory Arthritis

Rheumatoid arthritis (RA) Systemic lupus erythematosus (SLE) Psoriatic arthritis Anti-phospholipid syndrome Polymyalgia rheumatica Systemic sclerosis/scleroderma Spondyloarthropathies Sjögren’s syndrome Polymyositis/dermatomyositis Vasculitis (e.g giant cell arteritis) Necrotising arteritis Sarcoidosis Polyarteritis nodosa

If you are taking one or more of these medications for your arthritis, you may be at high risk for getting the flu or complications from the flu. Note: This list applies to medications that are ingested or injected and does NOT include medications that are applied to the skin such as creams and ointments. Your healthcare provider can clarify if the medications that you take weaken the immune system.

Arthritis medications that weaken the immune system

Steroids (corticosteroids) taken by mouth or intravenously, not applied to the skin or injected into a joint. prednisone (Deltasone, Orasone, Prednicin-M, Sterapred) prednisolone (Prelone) methlyprednisone (Medrol) hydrocortisone (Cortef, Hydrocortone) dexamethasone (Decadron, Hexadrol)) cortisone acetate (Cortone) betamethasone (Celestone) DMARDs (disease-modifying antirheumatic drugs) methotrexate (Rheumatrex, Trexall) azathioprine (Imuran, Azasan) hydroxychloroquine (Plaquenil) leflunomide (Arava) sulfasalazine (Azulfidine) minocycline (Minocin, Dynacin) cyclosporine (Sandimmune, Neoral, Gengraf) mycophenolate mofetil (Cellcept) gold (Auranofin, Ridaura, Myochrysine) chlorambucil (Leukeran) cyclcophosphamide (Cytoxan) Biological response modifiers (biologics) etanercept (Enbrel) infliximab (Remicade) adalimumab (Humira) anakinra (Kineret) abatacept (Orencia) rituximab (Rituxan) tacrolimus (Prograf, FK-506, fujimycin)

What are the symptoms of the flu?

The symptoms of 2009 H1N1 flu virus in people are similar to the symptoms of seasonal flu and include fever, cough, sore throat, runny or stuffy nose, body aches, headache, chills, and fatigue. Some people may have vomiting and diarrhea. People may be infected with the flu, including 2009 H1N1, and have respiratory symptoms without a fever.

How can I avoid getting and the flu or giving the flu to others?

The flu is spread from person-to-person by coughing or sneezing by people with influenza. Sometimes people may become infected by touching something – such as a surface or object – with flu viruses on it and then touching their mouth or nose. You can take simple actions to protect yourself and others from getting the flu:

• Get a seasonal flu shot now and the 2009 H1N1 flu shot when it becomes available.
• Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash after you use it.
• Wash your hands often with soap and water, especially after you cough or sneeze. Alcohol-based hand cleaners are also effective.
• Avoid touching your eyes, nose, or mouth. Germs spread this way.
• Try to avoid close contact with sick people.
• If you are sick with flu-like illness, seek medical care early. Your health care provider can determine if you need to be treated with antiviral medication.
• Keep away from others as much as possible to keep from making others sick. CDC recommends that you stay home for at least 24 hours after your fever is gone except to get medical care or for other necessities. Your fever should be gone without the use of a fever-reducing medicine.

Is there a vaccine against the 2009 H1N1 flu virus and who is it available for?

Yes. A vaccine for the 2009 H1N1 flu has been developed and will be available beginning mid-October 2009. People with inflammatory arthritis within any of the following prioritized groups are recommended to receive the 2009 H1N1 vaccine when it first becomes available:

• Pregnant women
• People who live with or care for children younger than 6 months of age
• Healthcare and emergency medical services personnel
• Persons between the ages of 6 months and 24 years old
• Persons between the ages of 25 and 64 years old who are at higher risk for 2009 H1N1 because of chronic health disorders or compromised immune systems (including with inflammatory arthritis)

Persons age 65 or older (including those with inflammatory arthritis) are not included in these prioritized groups because current studies indicate that the risk for 2009 H1N1 flu infection among persons age 65 or older is less than the risk for younger age groups. We do not expect that there will be a shortage of 2009 H1N1 vaccine, but availability and demand can be unpredictable. Once the demand for vaccine among the younger groups has been met, however, people age 65 or older with inflammatory arthritis should receive the 2009 H1N1 flu shot.

Do I need to get a flu shot?

Yes, CDC recommends certain persons with weakened immune systems, which includes people with inflammatory arthritis, get flu shots.

People with inflammatory arthritis should get—

• A seasonal flu shot every year. These are available beginning in September.
• The new 2009 H1N1 flu shot when available (see question above). These will begin to be available in mid-October 2009.

People living with inflammatory arthritis should get the "flu shot"— an inactivated vaccine (containing fragments of killed influenza virus) that is given with a needle, usually in the arm. The flu shot is approved for use in people inflammatory arthritis.

The other type of flu vaccine — nasal-spray flu vaccine (sometimes called LAIV for “live attenuated influenza vaccine)—is not currently approved for use in people with inflammatory arthritis. This vaccine is made with live, weakened flu viruses that do not cause the flu). LAIV (FluMist®) is approved for use in healthy people 2-49 years of age.

What should I do when I am sick?

• If you develop flu-like symptoms contact your healthcare provider.
• Avoid contact with others. You should stay home and avoid travel, including not going to work or school, until at least 24 hours after your fever is gone except to get medical care or necessities. Your fever should be gone without using fever-reducing medications.
• If you leave the house to seek medical care, wear a facemask, if available and tolerable, and cover your coughs and sneezes with a tissue.
• Do not stop taking any medicine you take for your arthritis unless told to do so by your physician.
• Seek medical attention early if you develop symptoms of the flu. Treatment is available for persons with severe disease and those at high risk for complications. Persons with inflammatory arthritis are considered high risk for complications from the flu; therefore, your health care provider may choose to prescribe antiviral medications for you if you get the flu.
• If you are exposed to someone who has flu, consult your health care provider. They may prescribe medication to help prevent you from getting the flu or watch you closely to see if you develop flu symptoms.

For more information:

H1N1 Flu: General informationhttp://www.cdc.gov/h1n1flu/general_info.htm

Arthritis Foundation Flu: What People with Arthritis Should Know*http://www.arthritis.org/the-flu.php

H1N1 Advisory for People with Lupus*http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=2681&zoneid=99

Lupus and Influenza Vaccines*http://www.lupus.org/webmodules/webarticlesnet/templates/new_learnliving.aspx?articleid=2688&zoneid=527

* Links to non-Federal organizations are provided solely as a service to our users. Links do not constitute an endorsement of any organization by CDC or the Federal Government, and none should be inferred. The CDC is not responsible for the content of the individual organization Web pages found at this link.

http://www.cdc.gov/h1n1flu/arthritis.htm

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, H1N1, flu, swine

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, flu, h1n1, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, swine, thrombosis, usa

12:55 pm: 13th International Congress on Antiphospholipid Antibodies


When: April 13-16, 2010 

Four days of the most up-to-date evidence-based medicine and state-of-the-art scientific sessions on Antiphospholipid Antibodies and the Antiphospholipid syndrome. 

Participants included: rheumatologists, hematologists, OB-Gyn specialists, neurologists, dermatologists, cardiologists, pathologists, researchers, laboratory scientists and clinicians dealing with Antiphospholipid Syndrome, SLE and other related autoimmune diseases.
 
There will be a patient session on Wednesday April 14, 2010 from 5:00-6:30PM CT 

URL for more information on costs, hotels & location here: http://www.utmb.edu/apla2010 

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, APLA, conference, CME, international

Tags: america, anticoagulant, antiphospholipid antibody syndrome, apla, aps, aps foundation, apsfa, clot, cme, conference, dvt, heart attack, hughes syndrome, international, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

12:11 pm: Volume 14 of the APSFA Newsletter - "Antiphospho...What?"

Hello!!

The SUMMER/FALL 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol14SumFall09.pdf

The next volume will be coming out in late Fall, early Winter 2009.

Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Thank you for your continued support!

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS



Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

03:17 pm: Preventing Miscarriages

On June 25th, Judy Smith did an interview with Fox News in Tampa Bay. Judy has had several miscarriages and at one point thought she had MS. It wasn't until her Dr. did a simple blood test that revealed she had a potentially life threatening illness called APS.

She can not stress the importance of the APS Foundation of America, Inc (http://www.apsfa.org), and how it has played a part in helping her cope with this disease. Not only do they have a support group for others with APS, but they are the only "United States nonprofit health agency dedicated specifically to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, and young strokes and heart attacks."

"Knowing more about APS can make all the difference. Get in the Know and Get in the Flow!"

Please watch this video as it may help someone you know.



http://www.myfoxtampabay.com/dpp/health/doctor_jo/Preventing_miscarriages_070809

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

01:54 pm: Signs and Symptoms of Antiphospholipid Antibody Syndrome: Get in the Know and Get in the Flow!
Date:  06/22/2009
Contact: Christina "Tina" Pohlman
Phone: 608-782-2626
Website Address: www.apsfa.org
Email Address:  apsfa@apsfa.orgThe Antiphospholipid (APS) Antibody Syndrome Foundation of America, Inc. (APSFA) urges the public, as well as the medical community, to learn more about this rare disease. APS Awareness Month runs throughout June.

APS is an autoimmune disorder.  Such illnesses occur when the body’s tissues are attacked by its own substances. In APS, the body recognizes certain components of blood or cell membranes as foreign substances and produces antibodies--a specialized protein the body uses to prevent infection--against them. It is the major cause of strokes in persons under 40 years old, blood clots (thrombosis) – which can lead to heart attack or stroke – vision disturbances and repeated, otherwise unexplainable miscarriages.

While more general practitioners have become familiar with APS in the last few years, many physicians – and most of the public – are still unfamiliar with both its symptoms and the damage it can cause.People who arrive at emergency rooms and doctor’s offices with the following issues should be tested for APS:

•    Heart attacks and strokes in those under 50
•    Transient ischemic attacks, known as “mini-strokes.” TIAs last 10 minutes or less and leave no permanent damage.
•    Multiple miscarriages and stroke
•    Blood clots in the lung (called pulmonary emboli) or deep veins in arms and legs (called deep vein thrombosis, or DVT)
•    Diminishing mental alertness, such as loss of concentration, memory loss and difficulty with reading comprehension
•    Migraine headaches
•    Partial or total vision loss
•    Dizziness
•    Seizures

APS shares symptoms with more well-known disorders such as multiple sclerosis and lupus. Diagnosis and treatment delays can cause serious, sometimes fatal complications. A simple blood test can determine whether someone has APS.

The APS Foundation of America, Inc. is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization dedicated to spreading awareness and support to those with the disease.

Knowing more about APS can make all the difference. Get in the know and Get in the Flow!

For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626 Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org

Public Service Annoucement for Week 4:
http://www.youtube.com/watch?v=GRiK_CncGyU




Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSA

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, psa, stroke, thrombosis, usa

03:17 pm: APS Often the Culprit Behind Heart Attack and Stroke in Younger Adults

APS Often the Culprit Behind Heart Attack and Stroke in Younger Adults

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

12:54 pm: Press Release: APS Linked to Birth Difficulties (2009)


Date:  06/8/2009
Contact: Christina "Tina" Pohlman
Phone: 608-782-2626
Website Address: www.apsfa.org
Email Address:  apsfa@apsfa.org

The Antiphospholipid Antibody Syndrome Foundation of America, Inc. (APSFA) urges the public, as well as the medical community, to learn more about this rare disease. APS Awareness Month runs throughout June.

APS is an autoimmune disorder.  Such illnesses occur when the body’s tissues are attacked by its own substances. In APS, the body recognizes certain components of blood or cell membranes as foreign substances and produces antibodies--a specialized protein the body uses to prevent infection--against them. It is the major cause of strokes in persons under 40 years old, blood clots (thrombosis) – which can lead to heart attack or stroke – vision disturbances and repeated, otherwise unexplainable miscarriages.

Even otherwise-healthy women are at higher risk of developing blood clots and preeclampsia, a blood pressure disorder that occurs only during pregnancy. In women with APS, blood clots can form in the placenta and starve the baby of nutrition. Placental clots can cause fetal growth problems and distress, premature birth, or miscarriage. Some women with APS have difficulty becoming pregnant at all.Babies born to women with APS often are delivered between 30 to 35 weeks gestation, or about 5 to 10 weeks early. Low birth weight – between 3 to 5 pounds – is not uncommon, although the babies generally are healthy and thrive after delivery.

Physicians often suggest that women of childbearing age who also are susceptible to blood clots remain indefinitely on a course of low-dose aspirin therapy. Aspirin is a readily available, inexpensive drug to help guard against blood clots. As with gestational diabetes, in which the illness resolves itself once the baby is delivered, it is possible for some women with clotting issues during pregnancy to return to full health post-birth.

APS can be diagnosed with a simple blood test. It frequently is found in conjunction with lupus, another autoimmune disorder that primarily targets women.

Knowing more about APS can make all the difference. Get in the know and Get in the Flow!

The APSFA is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization.

For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626 Website Address: www.apsfa.org. Email Address: apsfa@apsfa.orgPublic Service Announcement for Week 2:

http://www.youtube.com/watch?v=z2snb2bXUEI


Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

01:20 pm: JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!




Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, psa, stroke, thrombosis, usa

09:04 pm: Antiphospholipid Syndrome (APS) Education

Michael D. Lockshin, MD

Attending Rheumatologist, Hospital for Special SurgeryProfessor of Medicine, Weill Cornell Medical CollegeDirector, Barbara Volcker Center for Women and Rheumatic Disease

In this presentation, Dr. Lockshin provides an explanation of antiphospholipid syndrome (APS) and how it can be treated.  He then answers questions submitted by patients in attendance.

http://www.hss.edu/conditions_antiphospholipid-syndrome-education.asp

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

09:25 pm: Volume 13 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
Hello!!

The SPRING/SUMMER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol13SprSum2009.pdf

The next volume will be coming out in late Summer, early Fall, 2009.

Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Thank you for your continued support!

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

07:33 pm: Antiphospholipid Antibody Syndrome (APS) Workshop

Who: Hospital for Special Surgery

What: Antiphospholipid Antibody Syndrome (APS) Workshop

Where: 535 East 70th Street, New York City

When: Thursday April 30, 2009 from 6:00PM - 8PM EST

Why: APS can affect any organ, potentially causing blood clots, strokes, miscarriages, or other symptoms. It can occur alone or may be associated with an immune disorder like lupus.

For More Information: Call 212-774-7326

To Register: Click here: http://wwww.hss.edu/pped

This one-session workshop provides an essential overview of diagnosis and treatment, and the opportunity to share your experiences with others coping with APS.

Speakers will be Michael Lockshin, MD and Jillian Rose, LMSW

The APS Foundation of America, Inc will have materials present.

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

05:53 pm: New Cafe Press Graphics & Gear - Check It Out!

We just added several new designs in our CafePress store. If there's a design you like and it's not on an item (like a button, hat, sticker...etc) please email Heidii at heidi@apsfa.org and she will add it. Our Cafe Press Store is located here: http://www.cafepress.com/apsfoundation

100% of the profits from these products will go to the APS Foundation of America, Inc. APS Stands for Antiphospholipid Antibody Syndrome, which is a blood disorder that causes blood clots, strokes in young people and multiple miscarriages in women. The APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, public awareness, research and patient services in an effective and ethical manner. Thanks for looking!

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

07:01 pm: March is Deep Vein Thrombosis (DVT) Awareness Month



Click on this banner to watch the video:


or you can watch this here: http://www.youtube.com/watch?v=RUYI6Xju4RA

For DVT related awareness gear go to http://www.cafepress.com/apsfoundation.

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, pe, stroke, thrombosis, usa

08:38 am: Volume 12 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!

Hello!!

The WINTER/SPRING 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol12WinSpr2009.pdf

The next volume will be coming out in late Spring, early Summer, 2009.

Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Thank you for your continued support!

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter


Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa

10:05 am: Volume 11 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!


The FALL/WINTER 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol11FallWin2008.pdf  

The next volume will be coming out in late winter/early spring, 2009.Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

A patient story is as easy as writing your intro!

Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm  

Thank you for your continued support!

Keyword: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter

Tags: america, anticoagulant, antiphospholipid antibody syndrome, aps, aps foundation, apsfa, clot, dvt, heart attack, hughes syndrome, lupus, migraine, miscarriage, newsletter, pe, stroke, thrombosis, usa